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BCM Families Foundation supports scientific research toward gene therapy. You can make an importance difference by sending your donation today.

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BCM Families Foundation maintains a forum dedicated to discussions about Blue Cone Monochromacy. Meet other families with Blue Cone Monochromacy and share your problems and solutions. Please join also our facebook closed group named ‘BCM’.

Latest News


The BCM Patient Registry project is supported by funds of Otto per Mille della Chiesa Valdese:

The majority of 30 million people affected by rare diseases are children. Correct diagnosis by pediatricians can impact lives and help with cures. Share this post to spread awareness to your friends and family! #February28 #RareDiseaseDay #Cure4BCM

1) Dowload the BCMFF Flyers here: https://t.co/Q12yA2g2V8
2) Go to a local children hospital on Feb 28th at the Ophthalmology Department;
3) Give BCMFF flyers to Clinicians and take a picture;
4) Post your pictures on our FB Page...you might win a prize!

RDD2019! Our event will focus on spread awareness on our condition. We all know that because of the fact that BCM is a rare genetic disease, most clinicians do not know enough about it, which leads to a long time between detecting symptoms and determining a correct diagnosis.