Ambassadors

BCM Families Foundation Board of Ambassadors

 

John Cavitt

John and his wife Leah have three children affected by BCM. John is dedicated to spreading awareness of Blue Cone Monochromacy and ensuring a cure for future generations.

John is the founder of Houston-based Covenant Testing Technologies, currently the largest pure play well flow management company in the U.S. He has an extensive background in leadership in the petroleum industry. Over the years, John had a vision to create a company servicing the upstream sector that was built on a foundation that truly considers people its top asset. In 2013, John founded Covenant Testing, which strives to work out that value through innovative and environmentally responsible services coupled with a highly skilled team. John’s vision has proven successful as Covenant has rapidly grown to have one of the largest fleets of specialized assets in the world.

Outside of the office, John is passionate about moving the bar forward in BCM research and growing support globally for this rare condition.

 

You can reach John at: john.cavitt@bcmfamilies.org

Mark

Men with BCM cannot see the color red (it is dark like black). My wife always says when I die and go to Heaven I will finally see the glorious color red. We are both excited about a cure for BCM because we could share the moment when I first see RED!

As a man with BCM I experienced the struggle to perform ordinary daily activities such as driving a car, playing sports, following a teacher’s lesson on a blackboard, or simply reading a book. BCM men do not date as much as they do not drive. They are the last ones chosen on sports teams or other playground activities. It is difficult to follow what the teacher is showing the class. Thus there are many ways a cure for BCM can dramatically change the daily lives of men and boys with BCM.

I have BCM and my uncles, cousins, and grandson have BCM. We struggle with limitations from near- sightedness, light sensitivity, and color blindness and it affects education, sports, activities, job possibilities,and driving a car. Finding a cure can totally change a boy’s future and provide a way to overcome huge obstacles in life.

Marylee Dilling Mohn

Marylee’s son, father, and two cousins have BCM. Like most affected families, the correct diagnosis wasn’t made until 2017 when her son was diagnosed by molecular genetic testing. Marylee is an alum of UNC-Chapel Hill and Jefferson Medical College and competed residency at Baylor College of Medicine. After four years in private practice as a dual-boarded internist and pediatrician, she now works at a private equity firm in New York City. Her goal is to raise awareness and funds to find a gene therapy cure for BCM.

Trudi Dawson

Trudi Dawson lives in East Sussex in United Kingdom and has 3 children, only one of whom has BCM.
Before moving from London Trudi worked in Advertising and Marketing Communications for 15 years.

In 2006, Trudi also became a Birth and Post­‐Natal doula, supporting families before, during and after childbirth. She is now a full-­‐time Doula, Antenatal Teacher and Pregnancy and Postnatal Yoga Teacher.

She is an active sportswoman as well as being a keen horse-­‐rider. She is also on the Board of Trustees for the charity ‘Look Sussex’, supporting Visually Impaired Children and their families. Trudi has a particular passion for bringing the global BCM family together to support each other and help each family member reach his potential.