Botschafter

Unsere Botschafter repräsentieren die BCMFF und setzen sich für unsere Sache auf einer Vielzahl von Plattformen ein.

Sie nehmen an öffentlichen Veranstaltungen, Interviews und Konferenzen teil. Und, was noch wichtiger ist, kontaktieren und treffen sich mit potenziellen Spendern. Alles mit dem Ziel, für eine Heilung von BCM einzutreten und das Wissen und Bewusstsein über die Krankheit zu verbreiten.

Unsere Botschafter tragen dazu bei, die zukünftigen Ziele der BCMFF voranzutreiben und die Unterstützung öffentlicher oder privater Spendenaktionen (wie Sportwettbewerbe, Wohltätigkeitsdinner, Auktionen und internationale Konferenzen) zu erleichtern.

Wenn Sie eine Spenden- oder Lobbyveranstaltung in Ihrer Nähe organisieren möchten oder wenn Sie BCMFF-Botschafter werden möchten, wenden Sie sich bitte an unseren Vorsitzenden: John.Cavitt@BCMFamilies.org, info@BCMFamilies.org und laden Sie unser Toolkit herunter.

John Cavitt

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John and his wife Leah have three children affected by BCM. John is dedicated to spreading awareness of Blue Cone Monochromacy and ensuring a cure for future generations.

John is the founder of Houston-based Covenant Testing Technologies, currently the largest pure play well flow management company in the U.S. He has an extensive background in leadership in the petroleum industry. Over the years, John had a vision to create a company servicing the upstream sector that was built on a foundation that truly considers people its top asset. In 2013, John founded Covenant Testing, which strives to work out that value through innovative and environmentally responsible services coupled with a highly skilled team. John’s vision has proven successful as Covenant has rapidly grown to have one of the largest fleets of specialized assets in the world.

Outside of the office, John is passionate about moving the bar forward in BCM research and growing support globally for this rare condition.

 

You can reach John at: john.cavitt@bcmfamilies.org

Mark Young

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Mark is retired and lives in Atlanta, Georgia. He and his grandson have BCM, as well as several of his
uncles and cousins. BCM has had a major impact on his family so a cure would be a life-changing event for
many in his family. Mark and his wife Diane especially want to be helpful in finding a treatment or cure
for their 4-year-old grandson Zachary.

Mark graduated from the University of Georgia in 1979 with a major in Accounting and became a C.P.A.
(Certified Public Accountant). After 10 years in public accounting with Deloitte, Haskins, & Sells, Mark worked in senior finance positions as Controller, Treasurer, or Chief Financial Officer for five large public companies. After 10 years as Treasurer of Equifax, Mark retired in 2016.

Mark’s primary goal is to raise awareness and funding for a BCM cure or treatment so that the lives and
futures of young men and boys with BCM will be significantly changed for the better.

Marylee Dilling Mohn

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Marylee’s son, father, and two cousins have BCM. Like most affected families, the correct diagnosis wasn’t made until 2017 when her son was diagnosed by molecular genetic testing. Marylee is an alum of UNC-Chapel Hill and Jefferson Medical College and competed residency at Baylor College of Medicine. After four years in private practice as a dual-boarded internist and pediatrician, she now works at a private equity firm in New York City.
Her goal is to raise awareness and funds to find a gene therapy cure for BCM.

You can reach Marylee at: marylee.dilling@bcmfamilies.org

Trudi Dawson

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Trudi Dawson lives in East Sussex in United Kingdom and has 3 children, only one of whom has BCM.
Before moving from London Trudi worked in Advertising and Marketing Communications for 15 years.

In 2006, Trudi also became a Birth and Post­‐Natal doula, supporting families before, during and after childbirth. She is now a full-­‐time Doula, Antenatal Teacher and Pregnancy and Postnatal Yoga Teacher.

She is an active sportswoman as well as being a keen horse-­‐rider. She is also on the Board of Trustees for the charity ‘Look Sussex’, supporting Visually Impaired Children and their families. Trudi has a particular passion for bringing the global BCM family together to support each other and help each family member reach his potential.