font size


Trudi Dawson

Trudi Dawson lives in East Sussex in United Kingdom and has 3 children, only one of whom has BCM.Before moving from London Trudi worked in Advertising and Marketing Communications for 15 years. In 2006, Trudi also became a Birth and Post­natal Doula, supporting families before, during and after childbirth. She is now also an Antenatal […]

Mark Young

Mark is retired and lives in Atlanta, Georgia. He and his grandson have BCM, as well as several of his uncles and cousins. BCM has had a major impact on his family so a cure would be a life-changing event for many in his family. Mark and his wife Diane especially want to be helpful […]

Nicole Kim

Nicole is a stay at home mom, who has worked for several multinationals in management positions, traveling and living across 3 continents. Born in Seoul, Korea, she immigrated to the USA when she was 6, where she grew up a Virginian and got a degree at Cornell University. After a few years working in NYC, […]

Angela M. Tucker

Angela has 2 sons, only her youngest, Elijah, has BCM.As for her extended family, her nephew DC, 2 cousins, 2 uncles and 2 great-uncles have BCM. Angela was born and raised in Eastern, KY. She moved to Louisville to peruse her first bachelors degree, then moved to Northern KY for her second bachelors degree and […]

Johan Caspar Wohlfahrt, PhD, DDS, MS

Caspar Wohlfahrt lives with his wife Victoria who is a medical doctor in Oslo Norway. They have 2 boys, Oscar 21 and Edvard 19 with BCM and Caroline 13 years old. Oscar, born in Norway was diagnosed in 2001 at University of Minnesota, Departement of Opthalmology since the family lived in Minnesota for 3 years […]

Julius Bolay

Julius lives in Stuttgart, Germany and is 27 years old. He is affected by BCM and is currently the only case in his immediate family. His grandfather had BCM and his mother is a carrier. Julius is a railroad engineer (Dipl.-Ing.) at Deutsche Bahn and works on major infrastructure projects. He studied at the Technical […]

Marylee Dilling Mohn

Marylee’s son, father, and two cousins have BCM. Like most affected families, the correct diagnosis wasn’t made until 2017 when her son was diagnosed by genetic testing. She is an alumnus of UNC-Chapel Hill and Jefferson Medical College and completed residency at Baylor College of Medicine. Marylee is a double board certified internist and pediatrician […]

Ned Reade

I grew up in a family where multiple family members over many generations are impacted with BCM. My wife and I now live in Erie, Pa where we raised our family of 2 children. I held career positions through the 80’s and 90’s before starting my own networking consulting company in the late 90’s. I […]