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Renata Sarno

Renata has 5 relatives with BCM. In 1992 she earned a Ph.D. in Theoretical Physics, then worked in research about supercomputing and sub-nuclear physics until 1994. From 1994 to 2008 she and 3 other shareholders founded a web company,, that she sold to Expedia in 2008. Dr. Sarno created a BCM Families website that […]

Kay McCrary

Kay whose father, uncle, great-uncle, and 4 male paternal cousins, have BCM, is now grandmother to 3 cherished boys who are legally blind due to BCM. Kay is highly motivated to improve the lives of all males with BCM.She retired after 30 years as Director of Patient and Family Education at the South Carolina Department […]

Barbara Wade Sergent

Barbara holds an MBA from Cleveland State University and held various management positions in the banking industry until she put her career on hold to raise her five children. Mrs. Sergent is also the founder of WadeSergent Consulting, LLC through which she has provided project management services for some of the largest banking institutions in […]

Marylee Dilling Mohn

Marylee’s son, father, and two cousins have BCM. Like most affected families, the correct diagnosis wasn’t made until 2017 when her son was diagnosed by genetic testing. She is an alumnus of UNC-Chapel Hill and Jefferson Medical College and completed residency at Baylor College of Medicine. Marylee is a double board certified internist and pediatrician […]

Ned Reade

I grew up in a family where multiple family members over many generations are impacted with BCM. My wife and I now live in Erie, Pa where we raised our family of 2 children. I held career positions through the 80’s and 90’s before starting my own networking consulting company in the late 90’s. I […]