Rare Disease Day 2022

February 28th 2022 marks the fifteenth Rare Disease Day

Our event during 2022 Rare Disease Day will focus on spreading awareness on our condition.
We all know that, because of the fact that BCM is a rare genetic disease, most clinicians do not know enough about it, which leads to a long time between detecting symptoms and determining a correct diagnosis.

Although we are rare, we still have the power to help change all of this. That is why, on the 28th of February, we invite you all to contact 5 local ophthalmologists in you area and mail or email them the flyers you can find on the left.

With more than 200 families involved in BCMFF, we can reach in 1 day 1,000 doctors worldwide!

Get involved in 2022 Rare Disease Day!

1) Dowload the BCMFF Flyers and the Brochure here on the left;

2) Select 5 local ophthalmologists;

3) Before February 28th, send the flyers via e-mail or via mail to to chosen Hospitals/Ophthalmologists.