Prepare documents a), b), c) and possibly d), e) and f)
a) For minors age 7 and older, print and sign BCM Registry Assent Form.
b) Prepare an e-copy of your/your son’s DNA test report.
c) Prepare a document with your family data: total number of people affected by BCM in your family – dead and alive -, and number of alive people affected by BCM in your family . If you have a family pedigree prepare an e-copy of it. Prepare a narrative description of who in your family is affected: grandfather, father, son(s), brother(s), uncle(s), cousin(s), for as far back as you can be sure of this information.
If your doctor is not in this list:
S.G. Jacobson, A. Iannaccone, J. Carroll, M. Michaelides, E. Martina, A. Hutchinson , S. Marchese
d) Prepare an e-copy of your/your son’s clinical report.
e) Print, sign and scan UPenn Consent Form.
f) For minors age 7 and older, print, sign and scan UPenn Assent Form.