Blue Cone Monochromacy > Forms and Contacts

Forms and Contacts

This BCM Registry® is an online Patient Registry dedicated to a rare genetic retinal disease, Blue Cone Monochromacy. The Registry was created by BCM Families Foundation, a 501(c)(3) non-profit patient-led organization with the mission to cure BCM.

The BCM Patient Registry received funds from Otto per Mille della Chiesa Valdese.

Email us to Registry.Manager@BCMFamilies.org

BCMRegistry-Flyer-2020

2019-2020 Results have been reported in the BCMRegistry-Poster-Final

How to draw your family pedigree: Pedigree Explaination2a

BCM Registry Consent Form

BCM Registry Assent Form

UPenn Consent Form
UPenn Assent Form

Terms & Conditions

Privacy Notice to Patients

BCMRegistry-StepByStep-Instructions-New

BCM Registry Data Protection Impact Assessment (DPIA)