2

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Create your account

  • Go to the bottom of the webpage www.BCMRegistry.org/patients/ and create your/your son’s account.
  • Click on the confirmation email.
  • Log in at www.BCMRegistry.org/login and give consent(s).
  • Insert Personal Data.
  • Go to Diagnosis subpage and upload document 2), your/your son’s DNA Test Report.
  • Go to Clinician subpage and select from the list your clinician or, if there isn’t, send an email to Registry.Manager@BCMFamilies.org
  • Go to Family Data subpage and create your family ID, then from document 3), insert numbers of total and alive people with BCM in your family – see also Pedigree-Explanation.