2022 BCM Families Meeting CANCELLED


It is with great disappointment that BCM Families Foundation is cancelling both

—the Charlotte Omni late afternoon Meeting Registration on Friday September 30 &

—the all-day BCM Families Foundation Meeting on Saturday October 1st.

This is because of unsafe weather and traveling conditions caused by Hurricane Ian.

We are cancelling this event for everyone’s safety, hoping to reschedule it at a later time.

CHARLOTTE, NC – October 1st 2022

Date: October,1 2022
Location: Omni Charlotte Hotel, Charlotte, NC – USA
Title: BCM Families Meeting on Blue Cone Monochromacy
Invitation for:All families affected by Blue Cone Monochromacy

BCM Families Foundation is pleased to invite you to the BCM Families Meeting on Blue Cone Monochromacy which will take place on October, 1 2022 in Charlotte, NC at the Omni Charlotte Hotel.

The meeting will be an opportunity to meet in person with other families and to hear from scientists and biotech companies about the progress of scientific research and gene therapies. We will talk about the future projects of our association. Come and participate, we are waiting for you.

Registration for the meeting

Registrations need to arrive before September 9, 2022.

Please insert in the registration the total number of people that will come with you. We have a limited number of seats in the Conference Room at the Omni Charlotte Hotel and a limited number of seats for the Lunch. Only people in the list will have access to the Conference Room and to the Lunch.

Please register you and your families and friends coming with you, sending only an Email to info@bcmfamilies.org with the following mandatory information:

1) Name and Surname

2) From: City State Country

3) Email Address:

4) How many people including you in your group:

5) If there are children under 10 who need childcare during the meeting, if yes how many and their date of birth:

6) Special requests on food: vegan, vegetarian, gluten free, allergies, or other:

7) BCMFF can offer a limited number of grants to pay hotel rooms, please request it, if necessary:

To apply, please fill this form Grant Form and send it to info@bcmfamilies.org  

Hotel Reservation

Meeting and conferences will be at :

Omni Charlotte Hotel
132 E. Trade Street
Charlotte, North Carolina 28202
Phone: (704) 377-0400

Omni Charlotte Hotel gave us a limited number of discounted rooms for the BCMFF meeting.

Please book through this link, in order to receive the discounted BCMFF rate:


The link is going to be active until September 9, 2022 or until the total number of available rooms have been booked.

Preliminary Agenda:

Important notes

1) GRANTS: BCMFF is able to offer a limited number of grants covering cost of the hotel room during the meeting.  This is limited only to individuals or families for whom this financial assistance would allow them to be able to attend.  To apply, please fill this form Grant Form and send it to info@bcmfamilies.org  

2) Covid Rules: current regulations of the state of NC will be applied for social distancing, vaccination and masks.

3) CHILDCARE: A children’s room for young children – under 10 – during the October 1st meeting will be available at no charge (but requires advance reservation before September 1, 2022 via the registration email please make a request to info@BCMFamilies.org). It is across the hall from the conference room and welcomes parents to drop in. It will be staffed by a Professional Childcare service. Please if you come with children and want to apply for this service, send us information on the number of children and their age. No enrollment for childcare is allowed after September 1.

4)SATURDAY’s LUNCH: One meal together is offered free of charge at noon October 1st in the foyer at our meeting site.

How to reach the Hotel


Omni Charlotte Hotel is located in the heart of Charlotte’s Uptown financial district. The physical address is 132 E. Trade Street, Charlotte, North Carolina 28202


Charlotte Douglas International Airport

About 8 miles from Charlotte Douglas International Airport (approximately 15 minutes).


The Omni Charlotte Hotel offers valet parking only. Check with the hotel the price of the service.


While the hotel does not offer transportation services, the following options are available:

use TAXI SERVICE or UBER or ask to the hotel for CAR SERVICE.


The Charlotte Transportation Center is located just 2 blocks from hotel. The AMTRAK station is located 1.5 miles from the hotel.


Too many to list!  Below are recommended sites. (To see a full Charlotte Chamber of Commerce list of Attractions, go to www.charlottesgotalot.com and click Attractions)

*CAROWINDS www.carowinds.com/rides-experiences (Ride 14 multimillion dollar rollercoasters, 13 water rides, & Camp Snoopy pint-sized rides)

*DISCOVERY PLACE SCIENCE charlottesgotalot.com/things-to-do/attractions/discovery-place-science (Hands-on Children’s Museum)

*DISCOVERY PLACE NATURE (nature.discoveryplace.org in Myers Park)

*U.S.NATIONAL WHITEWATER CENTER whitewater.org/things-to-do/activities (Whitewater rafting & kayaking, zip-lines, rock climbing, ropes course)

*PUBLIC PARKS charlottesgotalot.com/things-to-do/outdoors-adventure

*DINE OUT (See charlottesgotalot.com & use its interactive map of restaurants to see ratings & specialities.  Many walking distance from the Omni.  Also notice the rooftop restaurants & bars. There are brewery tours, vineyard tours, barbecue tours, etc.


2022 Official Charlotte City Guide – Page 8-9 (publitas.com)

Optimist Hall, Charlotte NC | Restaurants in Charlotte (charlottesgotalot.com)

*MUSEUMS of art, culture, etc. https://www.charlottesgotalot.com/articles/arts-culture/charlotte-museum-guide

*NASCAR Racing & NASCAR museum https://www.nascarhall.com & drive a NASCAR race car by yourself nascarracingexperience.com

*SHOPPING, especially outlet shopping, premiumoutlets.com/outlet/charlotte