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BCM ist eine sehr seltene Krankheit.

Viele, von BCM betroffene Männer, haben einen großen Teil ihres Lebens ohne Diagnose oder ohne Kontakt zu anderen Betroffenen verbracht.

Mit dem Aufkommen von Gentests, Social Media/Internet und mit Unterstützung von BCMFF sind wir nun in der Lage, von BCM betroffene Männer miteinander und mit den betroffenen Familien zu verbinden. Mit dem Ziel: Sich gegenseitig von Erfolgen inspirieren zu lassen und von unseren gemeinsamen Reisen zu lernen.

 

Trudi Dawson, die Mutter eines BCM-Jungen in Großbritannien, präsentiert unsere Rubrik’60 Sekunden mit….‘ mit dem Ziel, Familien und ihren Erfahrungsschatz mit BCM zu verbinden. Während wir auf eine Heilung warten, arbeiten wir daran, uns gegenseitig und unsere BCM-Familie zu unterstützen und zu leiten.

Mike Fry

I am a stay at home dad to 5 wonderful children. Before that I was an attorney for the State of California in the …

Bradley Harrison

I love to travel, I have been to 17 countries, I like to snowboard in the winter, watch movies and play …

Nacer Boussahoul

I love hiking, being lost in wild spaces. I really enjoy martial arts practice and recently discovered a passion…

Robert Finch

I am retired from paid employment but I gained a BSc. in Mechanical Engineering (without seeing the…

Tom Rogers

I currently work in the Gym Group, Crawley as the Assistant General Manager. I aspire to be a…

Paul Rowland

For more than thirty years, I was the psychologist for North Carolina’s Division of Services for the…

Kyle Bieze

I was president of my highschool’s Latin Club, was elected into my university’s Student Government..

Benedikt Roemer

I am currently a research associate at a university in Germany and pursuing a PhD project in the…

Hawk Masters

I have worked so many different things in my life. Professional education as a baker..

Jameson Cavitt

When I am grown up I would like to study animals and help them to survive if they are hurt…

David T. Dilling

I am retired as the owner of an HVAC business which I sold in 2015. I like to read, go to movies and work in…

Oscar Wohlfahrt

I am currently studying for a bachelor’s degree in General Engineering. I am quite…

Dean Monthei

I am retired now but worked as a materials engineer specializing in electronics packaging…

Oscar Dawson

My great-great Grandfather was described as ‘not being able to see colour and not being…

George Donaldson

I grew up at a time when there was not much information about BCM, so I would suggest educating…

Virgil Wade

I was a Machinist. I would have liked to have been a Cowboy and Rancher all my life…

Jason Faulkner

I don’t like doing things that remind me that I can’t see as well as others. Not much for…

Robert Hicks

After a lifetime with BCM, here are a number of tips from various times of life: As a young person…