The first international meeting of families affected by Blue Cone Monochromacy was held in Atlanta, GA (USA) – on August 4-6th 2017
Location was OMNI Hotel Atlanta at CNN Center – Web Site – 100 CNN Center Atlanta, Georgia 30303 USA, Phone: (404) 659-0000 – Concierge: (404) 818-4406.
Meeting Program
Friday 4th – from 5.00 pm – Participants Registration and Welcome – In hallway at entrance to Maple Conference Room
Saturday 5th – Full Day – Maple Conference Room
8.00 – 9.00 am Breakfast and Participants Registration
9.00 – 9.30 am BCMFF President and Directors speaking
Part 1 Clinical presentation / patient phenotype – Moderator Prof. B. Wissinger
9.30 – 10.15 am Prof. S.G. Jacobson – Scheie Eye Institute University of Pennsylvania
10.15 – 10.45 am Prof. M. Michaelides, Moorfields Eye Hospital London, UK
10.45 – 11.00 am Q&A
11.00 – 11.15 am – Coffee Break
Part 2 Inheritance / Genetic Causes – Moderator Prof. W.W. Hauswirth
11.15-11.45 am Prof. B. Wissinger, University of Tubingen, Germany
11.45– 12.05 am Dr. E. Buena Atienza, University of Tubingen, Germany
12.05 – 12.45 am Prof. Hardcastle / Dr. Gardner – UCL Institute of Ophthalmology, London, UK
12.45 – 01.00 pm Q&A
1.00 – 2.00 pm Lunch
Part 4 Patients – Moderator Kay McCrary
2.00 – 2.20 pm BCM Bioptic Drivers Interviews by Trudi Dawson
2:20 – 2.50 pm Bioptic Driving – Prof. E. Peli – Harvard Medical School – Bioptic Driving
2.50 – 3.00 pm Q&A
3.00 – 3.30 pm – Coffee Break
3.30 – 5.00 pm Patients Histories and families Interviews by Trudi Dawson
Sunday 6th – Morning until lunch, Half Day – Lectures and activities – Maple Conference Room
8.00 – 9.00 am Breakfast and Registration
9.00 – 9.15 am BCMFF and the International BCM Patient Registry – BCMFF Directors
9.15 – 9.30 am Q&A
Part 3 – Gene Therapy – Moderator Prof. M. Michaelides
9.30 – 10.15 am Prof. W. W. Hauswirth – University of Florida
10.15 – 10.45 Prof. J. G. Flannery – UC Berkeley
10.45 – 11.00 Q&A
11.00 – 11.15 am – Coffe Break
11.15 – 12.00 AGTC representative
12.00 – 12.15 Q&A
12.15 – 01.00 pm Patients and Scientists Roundtable: a roadmap for BCM cure – Moderator Prof. A. Iannaccone
1.00 pm BCMFF President and Directors final thanks
Food and Beverage
Saturday and Sunday Breakfast and Saturday Lunch will be offered in the Atrium Terrace B.
Children
Children under 12 are welcome. A nanny service will be organized in the nearby Spruce Room (Max 60 children).
Mature teenagers who wish to hear the educational presentations will be welcome at the discretion of their parents or guardians.
Accommodation
We have a limited number of discounted rooms (50) at our disposal, a limited seating capacity in the conference room (100 participants) and in the children’s room (60 children under-12), so please register as soon as possible. No conference enrollment fees are being charged, plus those who have difficulty affording to attend may apply for a scholarship. Scholarships will be awarded with priority to people coming from abroad who are members of our forum (ning.bcmfamilies.org) and/or Facebook ‘BCM’ group. Then any other scholarship application, based on financial need from a member of our forum and/or Facebook group, will be considered. Scholarships for up to 50 hotel rooms can be provided.
Scholarship
Scholarship means that BCM Families Foundation will pay for the scholarship recipient’s Omni hotel rooms from August 4th to August 6th plus taxes. Any other hotel service and extra charges will be paid by you. If you cancel or if you do not check into the hotel, then the whole cost will be charged to your credit card (rate is $ 149 per night per room + 16% taxes + $5 per night). At check-in hotel will ask your credit card in order to cover extra charges and damages. If you requested a scholarship and the scholarship was approved, then BCM Families Foundation will pay for your room.
How to book the Hotel
After registration you will receive from BCM Families Foundation an email with your OMNI Hotel confirmation number.
If you didn’t receive a confirmation number please write to info@bcmfamilies.org
Registration Form
Please in order to to register contact info@bcmfamilies.org. There are only 2 hotel rooms and 8 seats in the conference room left.
How to reach the hotel
The Hotel is easily connected with the Hartsfield-Jackson Atlanta, GA (USA) International Airport through MARTA . Please find other information on how to reach the hotel here.
