Many people report that it took many years to achieve a clinical diagnosis of BCM. This is due to the fact that the BCM is a rare disease and you need to consult ophthalmologists specializing in inherited retinal diseases.
Here are some ophthalmologists who have visited other patients with BCM or have worked in scientific research on BCM and/or on similar diseases.
In particular, some eye doctors are carrying out research funded by our foundation and have been chosen for their expertise and for their interest in regard to the BCM.
Ophthalmologists and clinical centers expert in BCM
apl. Prof. Dr. med. Katarina Stingl
Leitung der Sprechstunde für Erbliche Netzhautdegenerationen
Zentrum für Seltene Augenerkrankungen
Forschungsgruppe Retinale Funktionsdiagnostik
Expert low vision centers and optometrists
| Full Name / Company Name | Location | Website | Notes | |
|---|---|---|---|---|
| Brillen-Plum-Kontaktlinsen Inhaber: Klaus Plum | Hauptstrasse 267, 44649 Herne | https://www.optik-plum.de/kontakt-impressum/ | optik-plum@euronet-server.com | Klaus Plum is member of Achromatopsie e.V. and supports about 40 Achromats in the greater area |
| Gunther Oesker – MÜLLER WELT Kontaktlinsen GmbH | Königstr. 43a, 70173 Stuttgart | www.mueller-welt.de | stuttgart@mueller-welt.de | |
| Low Vision Kreis e.V. | Siebenlindenstr. 10, 72108 Roittenburg | www.low-vision-kreis.de | info@low-vision-kreis.de | The Low Vision Kreis e.V. is an association of specialist opticians who provide advice and assistance to people with visual impairments |
Patient Associations
1. Achromatopsie Selbsthilfe e.V.
Website: https://www.achromatopsie.de
Email: kontakt@achromatopsie.de
2. ProRetina
Website: https://www.pro-retina.de/
