BCM Families Foundation is a non-profit organization incorporated in May 2014 in USA, in the state of Delaware, by families affected by Blue Cone Monochromacy (BCM).
BCM Families Foundation is a tax-exempt charity under IRS Code, Section 501(c)(3) (for the IRS determination letter please click here).
The mission of BCM Families Foundation is to eradicate Blue Cone Monochromacy by supporting the most promising biomedical and scientific research that will ultimately lead to a cure.
Ph.D., President BCM Families Foundation
Renata has 5 relatives with BCM. In 1992 she earned a Ph.D. in Theoretical Physics, then worked in research about supercomputing and sub-nuclear physics until 1994. From 1994 to 2008 she and 3 other shareholders founded a web company, venere.com, the first on-line reservation system for hotels on Internet, gathering more than 20,000 hotels especially in Europe and employing more than 200 people. She sold Venere to Expedia in 2008. Dr. Sarno created a BCM Families website that has developed international contact among families coping with Blue Cone Monochromacy (BCM). She supports significance research to lead to an understanding of the physiology and genetics of BCM.
Ed.D., Secretary BCM Families Foundation
Kay whose father, uncle, great-uncle, and 4 male paternal cousins, have BCM, is now grandmother to 3 cherished boys who are legally blind due to BCM. She is highly motivated to improve their lives. She has retired after 30 years as Director of Patient and Family Education at the South Carolina Department of Mental Health. She authored four books that explain schizophrenia, schizo-affective disorder, bipolar affective disorder in layman’s language and teach recovery strategies to patients and their involved families. Her workbooks have been translated into 28 different languages.
Barbara Wade Sergent
MBA, Treasurer BCM Families Foundation
Barbara holds an MBA from Cleveland State University and held various management positions in the banking industry until she put her career on hold to raise her five children. Mrs. Sergent is also the founder of WadeSergent Consulting, LLC through which she has provided project management services for some of the largest banking institutions in the United States and globally. Mrs. Sergent’s father, son, nephew, cousins and several uncles have BCM. Her goals are to improve the lives of those affected with BCM and find a cure for BCM.
Marylee Dilling Mohn
MD, Director & Ambassador BCM Families Foundation
Marylee’s son, father, and two cousins have BCM. Like most affected families, the correct diagnosis wasn’t made until 2017 when her son was diagnosed by genetic testing.
Marylee is an alumn of UNC-Chapel Hill and Jefferson Medical College and competed residency at Baylor College of Medicine. After four years in private practice as a dual-boarded internist and pediatrician, she now works at a private equity firm in New York City.
She strives to build awareness of BCM amongst medical professionals and to help advance a safe and effective gene therapy cure for BCM.