Privacy Notice

BCM Families Foundation – Online Privacy Notice

Effective Date: September 27th 2017

Your privacy is very important to us. This Online Privacy Notice applies to information about you that BCM Families Foundation (“BCMFF” “we,” or “us”) may obtain when you visit bcmfamilies.org, blueconemonochromacy.org or
bcmfamilies.ning.com (the “Sites”). This Privacy Notice also describes how we may collect, use, or share information about you; your choices regarding our use of your information; the ways in which we safeguard the information we collect; and how you may contact us regarding our privacy practices.

For information regarding our privacy practices concerning personal information submitted to the BCM Registry, please click here.


Information We Collect

Information You Provide

We obtain information that you provide to us directly, for example, data you submit when you create an account or participate in the forum. The information we collect may include personal information such as your name, email address, phone number, and date of birth.

Donation Information

We may obtain certain personal information when individuals make donations to BCMFF through the Sites. For example, you may provide information to us about others if you make a donation in someone’s honor. Similarly, other people may submit information about you to us if they make a donation in your name.

Information Collected Automatically When You Use the Sites

In addition to information you submit to us, we may collect certain information using automated means such as cookies, web beacons, and web server logs.

Web beacons are small graphic images or other web programming codes that also may be known as “Internet tags” or “clear gifs”. We may use web beacons or similar technologies for a number of purposes, including tallying the number of visitors to our Sites, to monitor how users navigate the Sites, and determining how many emails that we send were actually opened or how many articles or links were actually viewed.

• A cookie is a piece of data that a website can send to your browser. The cookie may then be stored on your computer as an anonymous tag that identifies your computer when you visit a website. Many web browsers are set to accept cookies by default, but you may be able to set your browser to notify you before you receive a cookie, or to remove or reject cookies. Please be aware that if you disable cookies, you may not be able to use certain features of the Sites or other websites. Also, disabling cookies may invalidate opt outs that use cookies to recognize devices that have opted out.

The types of information we collect automatically may include IP addresses, device identifiers, browser characteristics, operating system details, language preferences, referring URLs, length of visits, and pages viewed. We may combine this automatically-collected information with other information we obtain about you.

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Data Analytics

We also may use third-party web analytics services, such as Google Analytics, on our Sites. These service providers help us analyze how visitors use the Sites. To learn more about how Google may use information collected through the Sites, click here. To learn more about opting out of data collection through Google Analytics, http://www.allaboutdnt.com/.

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How We Use Information

We may use the information we collect about you for various purposes, including to:
• Personalize and improve our visitors’ online experiences;
• Respond to requests, comments, or questions;
• Monitor and analyze trends, usage, and activities of visitors to the Sites;
• Improve the Sites, our publicity efforts, and products or services we may offer;
• Contact you regarding your use of the Sites or, in our discretion, changes to our policies;
• Verify and/or authenticate a user’s identity;
• Prevent fraud or other misuse of the Sites;
• Communicate with you regarding webinars and meetings, or to send newsletters;
• Comply with legal requirements, industry standards, and our policies; or
• For any other purpose, with your consent.

In addition, we use information collected online through cookies, web beacons, and other automated means for purposes such as recognizing your computer when you visit the Sites, analyzing your use of the Sites, and tracking your activity over time and across websites, as well as across different devices you use to access the Internet.

We also may use the information we obtain about you in other ways for which we provide notice at the time of collection.

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How We May Share Information

We may permit our agents, vendors, consultants, and other service providers to access information we collect about you through the Sites to carry out work on our behalf. These third party service providers are prohibited from using such personal information for any purpose(s) other than to provide their services we have engaged them to perform.

We also may share your information: (1) if we are required to do so by law, regulation, or legal process (such as in response to a court order or subpoena); (2) to fulfill requests by government agencies, such as law enforcement authorities; (3) when we believe disclosure is necessary or appropriate to prevent physical harm or financial loss, or in connection with an investigation of suspected or actual illegal activity; (4) to enforce our policies, or protect legal rights, property, or safety; (5) in the event of a joint venture, partnership, merger, or other collaboration with another organization; or (6) in the context of a business negotiation or transaction relating to BCMFF or any affiliated entity (e.g., further to a merger, reorganization, liquidation, or any other business transaction), including negotiations of such transactions.

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Information Security

We maintain appropriate safeguards to help protect personal information collected through the Sites from loss, theft, misuse, or other unauthorized access, disclosures, alteration, or destruction. Although we use reasonable efforts to safeguard information, transmission via the Internet is not completely secure and we cannot guarantee the security of your information collected through the Sites.

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Links to Other Websites

The Sites may include links to other websites for your convenience and information. For example, when you make a donation using PayPal you are submitting your payment card number to PayPal, not to BCMFF. Websites that are operated by entities not affiliated with BCMFF may have their own privacy policies or notices, which we strongly suggest you review. BCMFF is not responsible for the content or privacy practices of any linked websites that we do not control.

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Social Features

The Sites may include features that are designed to permit interactions that you initiate between the Sites and third party websites or services, including third party social networks (“Social Features”). Examples of Social Features include enabling you to “like” or “share” our content on other websites or services; make comments on certain pages using a plugin; or to transmit content to our Sites from your account on a third party website or service.
If you use Social Features on the Sites, both BCMFF and the third party service may have access to certain information about you and your use of both our Sites and theirs. The information we collect in connection with Social Features is subject to this Privacy Notice. The information collected and stored by the third parties remains subject to those third parties’ privacy practices, including whether the third parties continue to share information with us, the types of information shared, and your choices with regard to what is visible to others on those third party websites or services.

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Children’s Privacy

Although parents or guardians may choose to submit information about their children, or on behalf of their children, the Sites are not intended for, nor targeted to, children under 13, and we do not knowingly or intentionally collect information from children under 13. If we learn that we have received information directly from a child who is under the age of 13, we will delete the information.

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How to Update, Change, or Delete Your Information

You may request that we update, correct, or delete your information collected through the Sites by emailing info@BCMFamilies.org. To help protect your privacy and security, we may take reasonable steps to verify your identity prior to honoring any such requests we receive.

To update information that you have submitted to the BCM Registry, please click here.

Many web browsers provide options to allow you to stop accepting new cookies, or to disable existing cookies. Please be aware that if you disable the cookies on your computer you may not be able to use certain features of this Sites or other websites, and disabling cookies may invalidate opt outs that rely on cookies to function.

You may unsubscribe from receiving newsletters and promotional emails from us by following the instructions provided in those email communications. Please note that even if you opt out of receiving such communications from us, we may continue to send you non-promotional emails, such as communications regarding our ongoing relationship with you.

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Information Regarding Global Data Processing

Please be aware that information we collect through the Sites may be transferred to and stored on our servers in the European Union and/or accessed and viewed in the United States. By using the Sites, you acknowledge and consent to the transfer and processing of your personal data as described in this Privacy Notice. Please be aware that the data protection laws and regulations applicable to your personal data transferred to other countries may be different from the laws in your country of residence.

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Changes to this Privacy Notice

We may change this Privacy Notice from time to time. If we make changes, we will notify you by revising the date at the top of this Privacy Notice. We encourage you to review this Privacy Notice whenever you visit the Sites to stay informed about our information practices.

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How to Contact Us

If you have questions regarding this Privacy Notice you may email us at info@BCMFamilies.org or write to us at:

BCM Families Foundation
Attn: Privacy Inquiry
P.O. Box 7711
Jupiter, FL 33468-7711

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